Nathan Notes

 

 https://ketohope.org/blog/2023/9/15/sick-day-survival-guide-keto-hacks-for-a-safer-illness

 Notes from Dr. Frye Visit 7/22/25: Patient Name: Nathan Page D.O.B.: 03/05/2018; 7 yrs, 4 mo at the time of visit Wt:52.8 lbs. [49.2 lbs on 08/20/2024] Other Instructions B12 / methylation metabolism Continue mB12 / folinic acid 0.4ml subcutaneous (in fat tissue) every other day. Watch to see if there is a wearing off effect. Give during sleep Frequent Recurrent Infections Causing Seizures Subcutaneous Ig to reduce recurrent infections. Clusters Diastat at bedtime when having clusters. ADHD. Impulsive subtype Intuniv 1 mg in the morning (or at bedtime if it makes him tired during the day) GI 3 .Microbiome Labs Mega IgG2000 Capsules - Start at 4 Capsules per day and can increase to 4 capsules. 2. Probiotic: VisBiome High Potency (Amazon) - 1 Capsules daily for 2 weeks and then increase to 2 capsules daily Alternative: Mas...

 Notes from: Common Testing and Treatments for Newly Diagnosed Patients with Autism https://www.youtube.com/watch?v=CCqM0dpudH8 Blood Test: Antinuclear antibodies (ANA): reflects autoimmunity C-reactive protein and sed rate: inflammation Food Sensitivities: IgE (not worried) IgG: delayed - hidden allergies Milk - Dallin rash going away my job as a practitioner is to make the suggestion – your job is to make the decision.

  July 27, 2025 from Wing, MGH Nathan 54 pounds Nathan 7 years old Nathan gained 5 pounds in 1 month of no seizures! Hooray! (1) Morning vs. Afternoon Ketones: It’s completely normal for ketone levels to be lower in the morning due to the Dawn Effect. This is our body’s natural release of cortisol in the early morning hours, which increase our blood glucose levels after an overnight fast—consequently, ketones are often lower in the morning than in the afternoon. (2) Timing Around Seizures: May I ask if the ketone level was taken before or after his seizures? We often see lower ketone levels and higher glucose levels after seizures due to the stress response in the body, which increases the stress hormones and raises the blood glucose. That could also be contributing to the lower ketone level. Thank you also for sharing his current macros—that’s very helpful. The 5-pound weight gain may also suggest a growth spurt, especially since his weight has been stable for the past 1.5 years. ...

I don’t know how you live like this Janelle You were my hero before but now I’m catching a glimpse of your life and it’s wild Great question, how do I do it everyday all day long? I've learned to truly cherish the happy moments, and endure the painful ones. I've learned that when things feel completely out of my control, and unfair, and all the things, I just have to super scale back and if I'm taking things an hour at a time, then I take them 5 minutes at a time or even minutes at a time... If I need to. I give myself lots of Grace in that regard. I've also learned to be a turtle and just focus on me and my baby when he needs it and just trust that everything else around me will work out, which is much easier said than done if you're a Janelle 😂 finally, prayer really helps. When I feel too exhausted and disorganized in my prayers, what has really helped me lately, is making an event on my Google calendar that I use as a cheat sheet. And then I can open that up, A...

Feb 8, 2025 From Dravet FB Group  “Don’t let your child’s diagnosis become your personality” It is something that is said often, given as advice. That advice is unrealistic. Hearing your child’s diagnosis is life altering, it changes everything you thought you knew before you heard those words. It changes how you view the world and what you once thought was important. It changes how you carry yourself through unimaginable obstacles. And it causes you to live in fight mode because flight mode isn’t an option. That diagnosis, It made you feel such an indescribable pain that you don’t allow anything less than to break you. That diagnosis, It is a part of you. You couldn’t stop it from changing your personality if you tried. And you shouldn’t. That diagnosis made you unstoppable, It made you love harder than you knew possible, And it made you strong. The type of strong you envied in others, the type of strong you never could have imagined yourself capable of. That diagnosis, It made yo...

July 16, 2025 from Wing, MGH Nathan 54 pounds Nathan 7 years old (1) Fluid Goal: His fluid goal remains the same on sick days. Based on his current weight, that would be 1590 mL (53 fl oz) per day. Checking his urine color for a pale lemonade shade can be a helpful indicator of good hydration. Darker color will indicate dehydration and will need more water. While when he has diarrhea and vomiting, electrolyte replenishment is needed and he might need extra electrolyte packet on those days. (2) Glucose and Ketone Monitoring: During illness, it’s common for inflammation and stress to impact glucose and ketone levels, so it may be difficult to have control over glucose/ketone levels to reach a goal. I recommend monitoring to avoid low blood sugar (<50 mg/dL) and overketosis (ketones >6 mmol/L). If either occurs, giving 5 grams carbohydrates (like a few berries, apple slices, or a small amount of juice) and rechecking after 15 minutes is a good approach. Also, noting any symptoms tha...