Cluster Keto Questions

May 15, 2024 

From Wing, MGH

Circuling back to acidosis -- Nathan has 14 days seizure free, no nausea. Then a horrible seizure cluster hits (10 seizures in 5 days) and we really struggle with keto which I think makes the clusters worse.  We get a lot of nausea, vomiting, and he eats about half his food. I try everything I can to get as much water in him as possible... I literally syringe electrolytes in all day.

My questions for you:

1) Any tips on how to use Keto to stop a cluster? Example: Tricia once mentioned we can half the carbs? Rescue does not work for us right now, it's agonizing.

time is predictable half carbs

2) Does acidosis present with high ketones or can you have it with low ketones?

ketones are ok, less than 5/normal range

3) What's the relationship between ketones and seizures. Example. If his ketones slip to 1.5 (below therapeutic for us), when is a seizure most likely to show up -- like in an hour, a day, etc.

0-48

4) When do I know to increase carbs? Example - if he's eaten half his meals for the day (only 10 net carbs)

watch behavior


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